About
Jamie
Jamie was
born on
Now 8 years old,
Jamie is a remarkable boy. He is happy, loving and talented, clearly possessing
an aptitude for numbers and a great interest in music. However, Jamie also
suffers from a severe disability: autism.
The months
immediately following Jamie’s diagnosis were very difficult for us. Rhona in
particular had a huge burden on her shoulders, reading around twenty books on
autism, carefully studying the latest research and treatments. This has been
particularly challenging whilst being with Jamie all day and giving him the
constant one-to-one attention that his condition demands. Unlike other parents in our situation, we had
no family members able to help.
Things are
looking much better now. From spinning around in circles, flapping his arms at
rotating objects and running up and down the room by himself, Jamie has
undergone a dramatic transformation since treatment began. He is much calmer
and is now able to concentrate on tasks and complete them. His IQ has increased
and his ability to communicate and interact with people has hugely improved.
Here is how he has progressed:
- Dec 2004: Diagnosed with classic childhood autism: ADOS††
score 9/10 for communication, 14/14 for interaction.
- Jan 2005: GF-CF diet, vitamin & mineral supplementation started
- Feb 2005: Attending pre-school only 4 hours per week
- Feb 2005:
- Apr 2005: Laboratory tests reveal gastrointestinal overgrowth of
clostridia and candida, Vitamin B6 and other deficiencies, lead &
mercury intoxication
- Jun 2005: Toilet trained (with frequent, prompted visits)
- Jul 2005: ATEC score down to 44 after only a few months of
- Aug 2005: Detoxification treatment started with TD-DMPS and Humet-R
- Sep 2005: Started mainstream nursery school at 9 hours per week with
- Dec 2005: IQ up to 122 – Jamie’s true potential
- Jan 2006: Methyl-B12 injections started
- Jan 2006: Nursery hours increased to 13 per week, including one full
day for the first time
- Apr 2006: Three weeks of daily hyperbaric oxygen therapy
- Jun 2006: From previous huge sensory deficits, learned to ride bike
with stabilisers
- Jul 2006: TD-DMPS replaced by the more potent oral DMSA with
immediate results
- Aug 2006: From meaningless scribbles, drawing suddenly becomes
age-appropriate
- Aug 2006: ATEC score down to 36
- Sep 2006: Entered mainstream reception class at 17 hours per week
- Sep 2006: Hyperbaric oxygen resumed, this time on a once-weekly
basis
- Oct 2006: Started piano lessons using Suzuki method
- Nov 2006: Toilet intervals now age-appropriate, less prompting
required
- Nov 2006: Able to hold pencil and form characters to an
age-appropriate level
- Dec 2006: ATEC score down to 31
- Dec 2006: Played “Twinkle Twinkle Little Star” on piano in school
play
- Jan 2007: Reception hours increased to 21 (three full days per week)
following massive gains in speech and social interaction
- Feb 2007: Able to cycle comfortably on “tag-along” attachment on
adult bicycle
- April 2007: School attendance increased to 3.5
days per week
- May 2007: First ever flight and holiday in France: went to Nice
without fear of flying, no problems with aircraft engine noise
- July 2007: Participated in annual “Peak Suzuki” music workshop in the
Peak District
- Aug 2007: Vision Therapy started: eye tracking exercises followed by
disruptive prism lenses
- Sep 2007: Started Year 1 in mainstream school at 4 days per week
with
- Oct 2007: ATEC score steady at 32: despite deficits, progress since
Dec 2006 has been at an equivalent rate to a neurotypical child
- Nov 2007: Prescribed glasses with directive base-up prism lenses:
immediate improvement in spatial awareness and ball games
- Nov 2007: Able to use computer and age-appropriate software such as
“
- Dec 2007: Urine “Organic Acid Test” shows gut pathogens now under
control, sulphur metabolism and glutathione synthesis in normal range
- Feb 2008: Great progress in swimming: able to swim breastroke and
backstroke
- May 2008: Graduated in Suzuki Book I piano at Trumpington Village Hall
- July 2008: ADOS†† test by same independent psychologist
resulted in following scores: communication – 8/10, interaction – 8/14.
- Aug 2008: Again took part in Peak Suzuki, this time participating
independently in interactive drama as well as piano playing
- Aug 2008: ABA program completed
- Sep 2008: Began taking anti-viral drugs to combat chronic infections
resulting from weak immune system
- Sep 2008: Started full-time in school year 2
- Sep 2008: Started Relationship Development Intervention (RDI) –
baseline assessment puts Jamie at level 0
- Oct 2008: Completed 5-mile country walk along canal towpaths,
across fields, over stiles etc.
- Nov 2008: Played “Short Story” in Guy Fawkes school play, as well as
playing a regular part
- Dec 2008: Named as Gifted and Talented individual by his school,
Dame Bradbury’s of Saffron Walden, Essex
- Jan 2009: Chronic infection of Human Herpes Virus 6 brought under
control by acyclovir drug – some herpes lesions, never previously
apparent, briefly appear on body during treatment
- Feb 2009: Learned to ride bicycle without stabilisers, though poor
peripheral vision confined Jamie to off-road riding for safety reasons
- Feb 2009: Performed Short Story at the
British Suzuki Institute concert at the South Bank Centre, London
- April 2009: Started taking new supplement OSR
(Oxidative Stress Relief); immediate reduction in arm-flapping and
prolonged sleep in the mornings
- May 2009: Took all Year 2 SATS tests alongside neurotypical peers
and scored above average across all subjects
- July 2009: Potty-trained overnight – no more nappies!
- Aug 2009: Better-than-ever participation at Peak Suzuki with minimal
supervision during performances, and impromptu performance of Gymopédie
- Aug 2009: Started learning to play the organ at local church, St
Mary & St Michael of Trumpington, near Cambridge
- Sep 2009: Begins Year 3 at Dame Bradbury’s school, still full-time
- Oct 2009: Bed canopy installed to screen out “electrosmog”
overnight – temporary reversal of overnight potty-training implying
accelerated detoxification
- Oct 2009: Progresses to level 2 in the RDI program
Videos of
Jamie playing the piano can be seen on YouTube. One of his early performances
was at Wimpole Hall which can be viewed here.
We now have
hope that one day Jamie might recover. Even if he does not, we are certain that
he will continue to make progress which would simply have been impossible
without his treatments and therapies.
The cost of
Jamie’s treatments has put a huge burden on us, with the ABA therapy alone
costing over £40,000 per year. Jamie’s aunt, Jeanne, therefore undertook a sponsored cycle ride in July to raise funds for
Jamie, particularly his ABA therapy. To read about Jeanne’s epic journey from
the source of the Rhine in Switzerland to Rotterdam see her diary.
Without Jeanne’s efforts and help from sponsors, it would have been very
difficult to fund the ABA for sufficiently long to collect the evidence
required to obtain LEA funding.
Jamie’s
medical treatment to remove toxic metals from his brain is not funded by the UK
National Health Service or any medical insurance scheme. This continues to be a
considerable financial drain, the cost of which may affect his future security.
If you would like to help support this ground-breaking treatment, please click
on the link below.
Click here to contribute to Jamie’s specialist medical
treatment for autism
Jamie and thousands
of other brave children like him are refuting the myths and false claims
emanating from the medical establishment, such as autism being a “lifelong
disability”. It is not. Autism is Treatable.
† 100=most autistic,
<10 is not autistic. See http://www.autismwebsite.com/ARI/treatment/atec.htm
‡ 100=average. Less than 85 is considered
mildly retarded. Greater than 120 is University potential.
†† Communication:
threshold for autism = 5/10; Interaction: threshold for autism = 6/14.
